HOME FOR A TIME

Jaden is home for a time... two weeks (God willing). We have Dr. Appointments on the 11th, and 14th. He will have surgery on the 14th for the bone marrow pull and spinal tap; where they will also give him Chemo in his spinal fluid. We get to bring him back home after surgery assuming nothing goes wrong.

Two weeks from yesterday we will be back at the hospital... So; I guess it will be on or around the 18th. This is the beginning of Consolidation 1.

Jaden is home... but is not "well" enough to really be home. The Doctors and nurses realized that with my prior nursing skills, and the loving care we were providing Jaden... that we could care for him here. (There were no Sweet's available at the Ronald McDonald House) I have a great handle on his diabetes, and Greg and I are both on top of his every medical need!!

Also; Jaden Got an G-tube before we left the hospital. We can now push meds through this tube in his nose. The tube goes straight to his stomach, and bypasses his ability to swallow food, meds, and drink. We should be able to keep him hydrated, and his Gleevec is really yucky to swallow... so we can dissolve it and push the med easily.
(Gleevec doesn't come in liquid form, and can not be crushed)

Jaden is still totally immunodeficient... so we can't have him around anyone outside the family. We can't risk infection. If he has a fever of 100.5 we are re hospitalized. We don't want that at all! So, as much as we would like to visit with everyone... at this time Jaden is just to ill.

We are one month into a 8 month heavy regiment of Chemo, and if we can find a match... bone marrow transplant. It has to be a 10 point match to be possible... Thank you for all those who are currently getting tested!!

Jaden's total Chemo treatment will last just over 3 years. This will be a long road, and we will have many bumps... However; as for our house... we trust the Lord!

Love in Christ
Greg, Heather, Jaden, Dylan, and Alaina